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Family Caregiver General Resources

Providing ongoing support and care for a loved one can be draining, but you aren't alone. Here are a few general resources, and if you need a one-on-one consultation to get more information, resources, and support for your unique situation, please reach out to me through this website!

  • Meet regularly with a local, in-person, support/resource group. Locally, in the Brazos Valley, I run several family caregiver support groups. If you'd like to be added to the caregiver email list, so you are kept current on meetings and resources shared through those support groups, please let me know.

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  • Seek the advice of an elder law/estate attorney as early as possible, and ensure your loved one has legal paperwork completed. This paperwork should be reviewed and updated by every 5-10 years so they accomplish their goal(s) for your loved one as they relate to current laws.​​​​

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  • Get confirmation of your loved one’s diagnoses and begin learning about them and planning for complications, care needs, etc.

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  • Determine your loved one’s wishes (seem too early? It isn’t). This includes advanced directives wishes as well as burial, funeral and disposition of remains wishes, but keep in mind wishes are just that, and if compromises need to be made for safety and care needs, then compromises should be made.

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  • Get educated on hospice and out of hospital DNR (again, not too early). What are you looking for that helps determine when these are needed for your specific situation? Those placed on hospice at the appropriate time have better quality of life and the caregiver has better support. 

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  • Review your loved one's (not your own) financial situation and care needs, so you know what options are available. Research additional support options.

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  • Develop your caregiver “contract” - See Michele’s 7-Steps to Approaching Caregiving (below).

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  • Schedule regular respite breaks for yourself. What needs to be done for this to occur on a regular basis.

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  • Regularly assess your level of burden using the caregiver burden (see form below).

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  • Communicate frequently with family members and friends involved in the care of your loved one. If there are difficult family dynamics, consider mediation services to allow clarification of roles, plans, and decisions, so everyone is clear regarding what to expect.

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  • There are a variety of living options for individuals including private home with in-home care, Independent Living, Assisted Living, Memory Care, Nursing Home, etc. To learn more about these options, reach out to me or watch this educational video: https://www.youtube.com/watch?v=TwSiXfPBie8

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  • All counties in the state of Texas have an Area Agency on Aging, offering state and federally funded programs and resources that might be useful to you and/or your loved one.

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  • Review the Additional Resources shown below:

Additional Resources

Branch In Sunlight

1

Michele's 7-Step Approach to Caregiving

It is imperative that each caregiver approach their role with responsible stewardship. This means taking time to evaluate what you are actually able to give emotionally, physically, mentally, financially, etc. This contract guards your heart and mind, so the caregiving role remains something you DO and doesn't become WHO you are.

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Get Educated

If you care for someone with dementia (now called Major Neurocognitive Disease), navigating this complex world can be overwhelming. I have found Tam Cummings to be an incredible resources. Please sign up for her newsletter and read her book, Untangling Alzheimer's

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Caregiver Burden

It is incredibly stressful, both physically and emotionally, to care for another human being. Almost half of caregivers end up dying before the one they are caring for, due to this impact this stress has on their health and wellness. It is important to take time to regularly gauge your stress level, so you are being a good steward of your own needs.

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Dementia Tools

Having a good set of assessment tools provides better guidance towards the most appropriate care. For a listing of the following tools (and much more), click the button below.

  • Dementia Behavioral Assessment Tool (DBAT)

  • Actively Dying Assessment Tool (ADAT)

  • Pain Assessment in Advanced Dementia Scale (PAINAD)

  • Geriatric Depression Scale (short form)

  • Facebook
  • Instagram
  • LinkedIn
  • YouTube

 

This website is designed to offer information on The Contribution Key’s services. This site, its material, and services are not intended to diagnose, treat, cure or prevent disease. Do not construe any information on this site, or its associated material, as medical advice and please consult with your provider for any health issues, diagnostic needs and medical care.

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*Articles, products, and videos shared in this newsletter are meant to encourage the adult learner and are not intended to replace your provider's instructions. Additionally, not all articles or links are peer reviewed. The idea is to explore ways to improve our health and wellness as we age. Be sure to compare and check any information learned from online sources with your provider(s), and be sure to consult with your provider(s) for all health care decisions.

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Keep in mind that communication via this website and associated email is not considered private, though communication through the coaching portal (YourCoach portal) is HIPAA compliant and protected.

 

FTC: some links may be affiliate links, which means I receive a small commission off any sales.

Michele's Story video filmed and edited by cat5films.com

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© 2022 by Michele Buenger and secured by Wix

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